The FDA designation marks a significant milestone in the development of a novel treatment for a rare neurodevelopmental disorderPlan to initiate ...

The FDA designation marks a significant milestone in the development of a novel treatment for a rare neurodevelopmental disorder Plan to initiate first-in-human U.S. clinical trials of lead drug candi ...

Proposals related to finding a cure for a rare inherited retinal disease are due by June 30, 2025 ...

The Motley Fool. DATE Thursday, Apr 24, 2025 Read More: Earn up to $845 cash back this year just by changing how you pay at Costco! Learn more here. CALL PARTICIPANTS Daniel O'Day: Chairman and Chief ...

What was known in the Soviet Union as the Nomenklatura seemed to emerge, in some form, in every state in which a movement ... these countries were adjured by the movements in power to be patient, for ...

Kathleen Coughlin is committed to removing obstacles for cancer patients, focusing on transportation, insurance, and ...

Recently. Neurologist and Migraine Specialist, Dr. Aliya Frederick, along with patient advocate, Sarah Aaronion, participated in a nationwide satellite media tour to discuss the growing role of ...

Recently. Neurologist and Migraine Specialist, Dr. Aliya Frederick, along with patient advocate, Sarah Aaronion, participated in a nationwide satellite media tour to discuss the growing role of ...

Launching a rare disease patient registry often requires patient advocacy groups to design a registry themselves or pay for an expensive customized solution. With the launch of Rare Central ...

Dr. Ruiling Yuan and Dr. Joanna Sadurski were named advocacy champions by the Association for Clinical Oncology (ASCO) during ...

After a long battle with illness and seeking many specialists, I emphasize the need to self-advocate for ongoing care following my cancer diagnosis.