When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental ...

Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.

As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine.

I achieved my dreams of becoming a veterinarian and growing my family, all while navigating highs and lows with my cystic fibrosis.

Cystic fibrosis is often described as an invisible battle — one that many people don’t understand unless they’ve lived it or loved someone who has. It’s a genetic condition that demands daily ...

For most CFers, we just want to be “normal” but sometimes you must be careful what you wish for. I was unprepared for adulthood. Once comfortable with the idea of dying young, I now struggle to adapt ...

Ready to help raise cystic fibrosis awareness on social media and beyond? Download the graphics you need to help share your story.

With topics ranging from emotional health to treatments, the blog is a platform to share your unique story. We invite adults and teens with CF, parents, siblings, spouses, friends, loved ones, ...